Guest blogger, Judy E. Stern, PhD
What is Infertility Family Research Registry?
Recent data suggest that fertility treatments may be risky for the health of mothers and children. How do we find out about the safety of fertility treatments? How do we learn whether reported health risks are a result of treatments for infertility or the underlying infertility itself? Are men with fertility problems susceptible to additional health risks? Are treatments such as egg donation and surrogacy also risky for the donors and surrogates?
To fully understand the answers to these and other health questions related to fertility treatment more information is needed and studies must be done that include large numbers of women, men, and children. Information has to be collected over many years and must include information on pre- and post-treatment health. Studies must include people who have had fertility problems as well as those without: those with children and those who never have children.
The Infertility Family Research Registry (IFRR) was developed to help get answers to these questions and to resolve some of the more challenging disputes related to infertility and infertility treatment. The registry is designed to collect information on health history and treatment history of women and men. Volunteers also enter data on the health of any children. This information is used by researchers to search for answers to many of the above questions. The registry also provides a bridge between volunteers and researchers who want to do additional studies to help find out about the long-term health and well-being of people who have experienced infertility.
The concept is simple. Come to our website, log in, and enter information into a secure database in a short 15-20 minute survey. Return periodically and update your information. Your participation can help us learn so much more.
Check us out at www.ifrr-registry.org . Find out what you can do to help in this effort.
Fertility Within Reach Comments
After years of infertility and treatments, I was finally blessed with two IVF children. I hope they never face the disease of infertility. However, if they do, I hope information and data will be collected to ensure treatments offered in the future are provided as safely as possible. We want a happy ending for all seeking health care for infertility and the truth is, those chances will be optimized by people participating in The Infertility Family Research Registry. With 1 in 6 couples facing infertility, chances are you know someone who could participate in the registry. Please share. Do it for our children, our future children, and hopes for grandchildren.
President, Fertility Within Reach
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